PHM-Exch> Request from Stop TB Partnership, with support from Patients and Communities

[Celina D'Costa Menezes]

From:  Dr Giuliano Gargioni,  Stop TB Partnership, Geneva


Dear Colleague and Stop TB Partner,

I am writing to request your participation in an innovative research 
study which may help all of us working in tuberculosis care and 
control to better understand how to strengthen partnerships between 
patients, their communities, the wider civil society, health care 
professionals and national TB control programmes.

The Stop TB Strategy www.who.int/tb/strategy/en/ outlines the 
components required for all of us to succeed in ultimately eliminating 
tuberculosis. Component 5 of the Strategy, "Empower People with TB and 
Communities through Partnerships", has three inter-locking elements: 
Advocacy, Communications and Social Mobilization (ACSM), Community 
Care and the Patients' Charter for Tuberculosis Care 
www.worldcarecouncil.org/content/patients-charter-tuberculosis-care. 
As of now, the available data does not capture sufficient information 
on the inclusion of all these elements in national strategies and on 
their implementation. Being aware that often what doesn't get measured 
doesn't get done, the Stop TB Partnership http://www.stoptb.org/ 
secretariat has commissioned a study to determine the progress in the 
promotion and implementation of the Patients' Charter in the 10 
highest TB burden countries. The research aims at understanding how 
the Patients' Charter is, or is not, utilized and what is the 'state 
of the stakeholding' in this integral element of Component 5 of the 
Stop TB Strategy. Understanding where we are today and learning from 
good experiences will help us all to build better partnerships and 
best practices in the near future.

This survey will be conducted by the World Care Council, the 
publishers of the Patients' Charter, with technical assistance from 
the IMAXI Cooperative, and will seek the inputs of the 150 'key 
actors' in each of the ten countries. Reaching out to a broad base of 
experts from the national programmes, public and private providers, 
the business and educational sectors, nongovernmental 
organizations/faith based organizations, care givers, community 
leaders and patients, the views of the wide 'TB Community' will be 
collected through an online survey and brief telephone interviews.

Ten minutes of your time is requested. We would appreciate if you 
could not only fill-in the questionnaire - that should take less than 
five minutes - but also agree to be interviewed by telephone for five 
minutes so that your point of view can be elaborated, and your 
expertise highlighted in the study report. Once you complete the form 
below, you will be instructed on how to arrange a convenient time if 
you want to be called.

Link to questionnaire: 
http://www.worldcarecouncil.org/content/state-stakeholding-empowering-patients 


I thank you in advance for your assistance. Your participation will be 
a very practical contribution to our collaborative work to Stop TB, 
and will be greatly appreciated.
Best regards,

Yours sincerely,
Dr Giuliano Gargioni, Acting Executive Secretary
Stop TB Partnership
http://www.stoptb.org/
E-mail: gargionig at who.int
Direct: (+41)22 791 1518
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Please forward this to your colleagues and partners in health.
Our apologies for any cross-postings.
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World Care Council
http://www.worldcarecouncil.org

IMAXI Cooperative
http://www.imaxi.org