PHA-Exchange> The Patients' Charter of the Tuberculosis Community (2)
claudio at hcmc.netnam.vn
claudio at hcmc.netnam.vn
Wed Oct 26 08:35:23 PDT 2005
>From George Kent <kent at hawaii.edu>: Comments by Claudio
> The draft charter on tuberculosis begins with a claim of a right to
> free care for tuberculosis. This needs some explanation and perhaps
> qualification because, as it stands, I think many people who might
> otherwise be supportive will not be able to get past that point. AGREE
>
> Are you saying that all tuberculosis victims have this right,
> everywhere, whether they are rich or poor? THAT IS WHAT IS BEING PROPOSED, AS
I UNDERSTAND IT.
>
> Are you claiming that this is an existing right, under current
> international human rights law? ALTHOUGH IT MAY BE CLAIMED, IT CLEARLY IS NOT
SUCH.
What would be the basis for that? A BASIS, THERE WOULD BE, AS TB IS A WORLDWIDE
PUBLIC HEALTH PROBLEM MOSTLY AFFECTING THE POOR WHOSE RIGHTS ARE VIOLATED.
If you are saying this is a new right that you propose, that is another
> matter. THAT IS WHAT IT SEEMS TO IMPLY.
>
> If free care is--or is proposed to be--a right, who carries the
> correlative obligation? GOVERNMENT HEALTH SERVICES.
That needs to be discussed fully.
>
> I'd like to hear more about these issues.
>
> Aloha, George AND CLAUDIO
>
>
>
>
> On Oct 10, 2005, at 5:16 AM, Claudio wrote:
>
> > From: loud.n.clear
> >
> > Greetings,
> >
> > We have been collecting input for the first draft (below) of the
> > Patients' Charter, encouraging people with TB, TB-HIV and MDR-TB to
> > "Write Your Rights!".
> >
> > Now, we seek your comments for the next version, to further our
> > efforts to foster 'positively empowered partnerships' between
> > people living with the diseases and the health providers /
> > authorities in the affected communities.
> >
> > As the Patients' Charter is intended to be the 'sister' document
> > for the forthcoming International Standards of Tuberculosis Care
> > (see below), we have tried to synthesize the needs of those
> > infected or affected, and of those who work to confront this
> > disease that kills two million of us each year. In short, a clear
> > declaration of our rights and responsibilities, and a tool to begin
> > to build 'community' on the ground, around the world.
> >
> > We would really appreciate your comments, and before 20 October 2005.
> > In solidarity,
> > Erika Blair and Case Gordon
> >
> >
> > DRAFT 1 : 10.10.05 Comments welcome, send to: blair at tbtv.org
> > ----------------------------------------------------------------------
> > --------
> >
> > Patients' Charter of the Tuberculosis Community
> >
> > The aim of the Patients' Charter of the Tuberculosis Community is
> > to explain both the Rights and Responsibilities of those infected
> > by TB, and to empower people with the disease and their communities
> > through this knowledge.
> >
> > Knowing and understanding these rights and responsibilities will
> > make the relationship with health care providers a mutually
> > beneficial one. The Charter sets out the ways in which patients,
> > the community and the health providers work as partners in a
> > positive and open relationship with a view to improving TB care,
> > and enhancing the effectiveness of the health care process.
> > Empowered patients, helping the fight to stop TB.
> >
> >
> > PATIENTS' RIGHTS
> >
> > 1. Right to Access to Care
> >
> > a. The right to free and equitable access to tuberculosis care,
> > from diagnosis through treatment completion, regardless of race,
> > gender, age, language, resources, legal status or having another
> > illness.
> >
> > b. The right to receive medical advice and treatment which fully
> > meets the new International Standards of Tuberculosis Care*,
> > centering on patient needs, including those with MDR-TB or TB-HIV
> > coinfections.
> >
> >
> > 2. Right to Dignity
> >
> > a. The right to be treated with respect and dignity, free of
> > stigma, prejudice or discrimination by health providers and
> > authorities.
> >
> > b. The right to quality health care in a dignified environment.
> >
> > c. The right to meet, share experiences and counsel with peers and
> > other patients.
> >
> >
> > 3. Right to Information
> >
> > a. The right to information about what health care services are
> > available for tuberculosis, and what engagements, direct or
> > indirect, are involved.
> >
> > b. The right to be given a clear, understandable description of the
> > medical condition, with diagnosis, prognosis (an opinion as to the
> > likely future course of the illness), and of the treatment proposed
> > including common risks and appropriate alternatives.
> >
> > c. The right to know the names of any medication or intervention to
> > be prescribed, and its normal actions and potential side-effects,
> > and its possible impact on other conditions or treatments.
> >
> > d. The right of access to medical information which relates to the
> > patient's condition and treatment, and a copy if requested.
> >
> >
> > 4. Right to Choose
> >
> > a. The right to accept or refuse any medication, investigation or
> > treatment, and to be informed of the likely consequences of doing so.
> >
> > b. The right to a second medical opinion, with access to previous
> > medical records.
> >
> > c. The right to choose whether or not to take part in medical
> > research programs.
> >
> >
> > 5. Right to Privacy
> >
> > a. The right to have privacy, dignity and religious and cultural
> > beliefs respected.
> >
> > b. The right to have information relating to the medical condition
> > kept confidential.
> >
> >
> > 6. Right to Complaint
> >
> > a. The right to make a complaint through channels provided for this
> > purpose by the health authority, and to have any complaint dealt
> > with promptly and fairly.
> >
> > b. The right to appeal to a higher authority if the above is not
> > respected.
> >
> >
> > 7. Right to Organize
> >
> > a. The right to join, or to establish, TB patient organizations,
> > and to seek support for the development of these clubs and
> > community based associations through the health providers,
> > authorities, and civil society.
> >
> > b. The right to participate as 'stakeholder' in all programs of
> > tuberculosis prevention and control, and to have meaningful TB
> > patient representation in local and national health authorities.
> >
> >
> >
> >
> > PATIENTS' RESPONSIBILITIES
> >
> > 1. The responsibility to share information
> >
> > a. The responsibility to provide the health carer with as much
> > information as possible about present health, past illnesses, any
> > allergies and any other relevant details.
> >
> > b. The responsibility to provide information about contacts with
> > immediate family, friends and others who may be vulnerable to
> > tuberculosis.
> >
> >
> > 2. The responsibility of treatment
> >
> > a. The responsibility to follow the prescribed and agreed treatment
> > plan, and to conscientiously comply with the instructions given to
> > protect the patient's health, and that of others.
> >
> > b. The responsibility to inform the health provider of any
> > difficulties or problems with following treatment.
> >
> >
> > 3. The responsibility to the community
> >
> > a. The responsibility to defend the community by encouraging others
> > to seek medical advice if they exhibit the symptoms of tuberculosis.
> >
> > b. The responsibility of showing solidarity with other patients,
> > and to march together to treatment completion.
> >
> >
> > 4. The responsibility to be empowered
> >
> > a. The responsibility to show consideration for the rights of other
> > patients and health care providers, understanding that this is the
> > dignified basis of the TB community.
> >
> > b. The responsibility to join in efforts to make the community TB
> > Free.
> >
> > ------------
> > Read the draft International Standards for Tuberculosis Care:
> > http://www.tbtv.org/pdf/ISTC_July_4_2005.pdf
> >
> > Patients' Charter of the Tuberculosis Community / draft 1 / 10.10.05
> > Comments welcome : send to Erika Blair (blair at tbtv.org)
> > http://www.tbtv.org/texts/newsflash/patients_charter_draft1.html
> >
> > This Draft will be available in french, and hopefully spanish and
> > russian in the next few days at www.tbtv.org or upon request to:
> > voices at tbtv.org
> > To unsubscribe, please send a blank e-mail with 'delete me' in the
> > subject line.
> >
> >
> >
> > TBTV.ORG
> > 'Our Voices, Loud and Clear!'
> > info at tbtv.org http://www.tbtv.org
> > Patients Support Network for TB-HIV-MDR
> > Solidarity - Advocacy - Mobilization / Frontline + Online
> > Non Profit NGO / French reg.: 0343032864, siren 477635155
> > Reg. HQ: 34380 Viols - Laval, France tel / fax: (33) 467 595 239
> > Studio 1: P.O. Box 32678, Lusaka, Zambia tel / fax: (260) 1 221 824
> > Studio 2: P.O. Box 10087, Yaoundé, Cameroon tel / fax : (237) 972 5108
> >
> > YAHOO! GROUPS LINKS
> >
> > Visit your group "ESCR-Right-to-Health" on the web.
> >
> > To unsubscribe from this group, send an email to:
> > ESCR-Right-to-Health-unsubscribe at yahoogroups.com
> >
> > Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.
> >
> >
>
>
> +++++++++++++++++++++++++++++++++++++++++++++++++++
> Professor George Kent
> Department of Political Science
> University of Hawai'i
> Honolulu, Hawai'i 96822
> USA
>
> Phone: 1 808 396-9422
> Cell: 1 808 389-9422
> Fax: 1 808 956-6877
> Email: kent at hawaii.edu
> Website: http://www2.hawaii.edu/~kent
> Skype ID: geokent
>
> New book: Freedom from Want: The Human Right to Adequate Food
> http://press.georgetown.edu/detail.html?id=1589010566
>
>
>
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